About Tree For Cure Foundation
A Foundation Born from Diagnosis, Driven by Hope, Advancing Gene Therapy
TreeforCure Foundation. Hope grows here for rare diseases
Our Story & Roots
A mission rooted in a parent's journey
TreeforCure Foundation was born from personal experience, persistent effort, and the determination to create hope for families living with rare disease.
What began as a parent’s fight to raise support for children affected by Sialidosis became a broader mission to help rare diseases receive the awareness and attention they deserve.
Our story
As a parent, it has been a long and difficult journey trying to raise funds for a rare genetic disorder which is ready for Pre-Clinical Production and Clinical Trials. Watching my children continue to progress every day.
It became a constant effort to raise even a few dollars to help bring hope to families around the world living with Sialidosis. Along the way came struggle, setbacks, and the painful realization that rare disease causes are often left without the support they urgently need.
That struggle led to the creation of TreeforCure Foundation.
Our mission started with intent to accelerate an ultra rare genetic disorder Sialidosis by raising funds rigorously to fund the completion of research that is ready for Pre-Clinical Production leading to Clinical Trials.
Our Team
The people driving our mission forward.
Kavitha Patnaik (Founder, Parent, Patient Advocate, Gene Therapy Representative)
Sandeep Narpala (Scientist, Patient Advocate, Board Member, Writer)